Sunday, August 18, 2013

Seriously?????

I'm not editing this so don't let children read it -

Lahey is giving us the run around about transferring Matt!!!!  Ae you serious?  I'm so glad I was told NO cause I do not accept anyone ever telling me no!!  (Friends from high school can attest to that!)
I was given the instructions on what to do to get him out by my friend Leslie, I took her advice and came in swinging!  I walked thru the main entrance and asked for a patient advocate - the head RN came about 20 minutes later.  I told her my situation but at the same time the doctor was consulting with Matt (my mom was in the room) so I had her walk with me to the room.  I heard their run around for a few minutes but then took both the nurse and doctor in to the hallway to discuss his transfer.  Matt doesn't want to ruffle any feathers - which is my complete opposite!!  Don't care who I piss off - we are talking my husband here!
I still got the run around - MGH is giving me specific instructions on how to transfer - lahey nurses are telling me no - they don't do it like that!  I finally said I don't know why you are having this pissing contest with MGH - just put in the transfer!  And in the same breath I said "it's my right to have a second opinion and my right to have him transferred!  Is anyone from the legal department here????"  I'm so done.  And yes, so far that has been my only swear.  Matt gets uptight and it causes really bad pain so I have to be calm in the room!

On to his diagnosis:  they took the cat scan last night and just "briefly go through it to rule out anything major.  And then today the attending reads it thoroughly". Ok first of all - do they have so much going on at 3am that they can't read it thoroughly???  I'll continue "so when we finally read the report it seems as though he has developed pneumonia in his right lung and pericarditis (which is fluid around his heart)."

I will update more when we move to MGH.  He looks like hell - his breathing is labored and he is in pain.  Please continue to pray for him to heal!!  Xoxo


Excruciating pain!!!! NOT NORMAL!

Last night Matt could hardly talk and is in horrific pain!  They did a cat scan and xrays and found that his lung is not inflating.  It's not collapsed....yet....but my feeling is that your body can only be in distress for so long!!!  As of this morning, he is still in massive pain.  I do not know why they have not called in a lung specialist!  And they can not figure out WHY he is so much pain.  Matt has a massively high pain tolerance - think he had 3 heart attacks before he thought he should see someone about it.  So I'm nervous about this.  I want more done. 
So as I type, the big kahunas are on their way in as I look for people who can assist us in getting him to MGH and to the CCU there.  (Oh, the big kahunas are my mom and Bobbie Botticelli).  I know they will have things answered and everyone on their toes. 
Please please PRAY for him.  We do not know what's wrong, why he is in pain or how to control it!  Believe in the power of prayer and positive thinking! 

Saturday, August 17, 2013

Cat Scan time!!!

It's 930 pm and I had just left the hospital (again) with Matt resting (he had just been given dilaudin for his pain) but he texted me that he is going in now for a cat scan to rule out a blood clot in his lung!!  This poor guy is so uncomfortable - it hurts to breath and hurts to talk too much (I use my hands so unless my arm was broken, I could still get my point across!). 
I will go back in if something happens or if he needs me there.  The babysitter is on-call and I'm sure if I called my mom, she would be over here in a nano-second. 
I will update when I know what's going on.  I'm pretty sure he will not be going home tomorrow though. 

Chest pain!!

Of course right after I left this afternoon, Matt texted to tell me his chest pain is getting worse and he is going in for an Xray.  He said the pain in his chest hurts to breath - like pneumonia.  I am waiting for a sitter to get back in there to see what is going on.  Earlier in the day we were self-diagnosing him with me on the computer looking up what could cause it.  GERD was one of them, as was Angina.....
I'm hoping this is simple and he will be alleviated from the pain. 
Thank you for your support and well wishes!!!

We moved rooms!!!

Matt was moved this morning out of the CCU to a "regular" room on the cardiac floor.  His vital signs are great however he is still experiencing pains in his chest.  The doctors and nurses are attributing it to them being inside him for 4 hours manipulating everything AND for the blood flow rerouting.  He doesn't look himself but he's exhausted - how can anyone sleep in a hospital when they draw your blood and check your vitals every 2 hours?
He should be out of here tomorrow if things go as planned.  If something else happens or if he experiences any more discomfort - in to Boston we go.  I'm not playing any more games with this place.
Thank you for following us on the blog!  It's so much easier than answering a million texts!!!  Xoxo

Friday, August 16, 2013

No visits today

Unfortunately I was unable to see Matt today - who is still in the ICU.  He was not feeling that well and they had given him some medication to make him sleepy so I'm glad he was able to rest without any company!  He told me that the doctors were not happy with the "flow" that he is getting through the artery at this point.  He was also telling me that he had a minor heart attack while they were performing his procedure (something his surgeon did not tell me so I'm hoping that it just sometimes happens and something they can control etc).  Matt is still in a lot of pain - I'm not sure if it's the same pain he experienced for the last few weeks or if it's pain from his heart being manipulated for almost 4 hours.  It's really hard not being in the room with him and asking every question to the nurse and doctors like I want to.  THANK GOD Priscilla is now home and I'll be able to go in tomorrow to get some answers.  Matt also thinks that he will be in a regular room by tomorrow and out of the ICU which is really good news!  I'll update more as I get more information.  Thank you ALL for your support!  It means so much to us that we have such a large group of people caring and praying for him.  Keep sending those prayers and positive thoughts our way!!! 
Matt has a little bit of a tough night in the ICU with massive sweats (I think his body reacting to all the medications they pumped in to him).  He was rough looking when I left him last night - as it was really late and I could only spend about 5 minutes with him.  His heart surgery he is totally awake and coherent for so he was mentally and physically exhausted and on edge (as any of us would be being on an operating table for 4 hours and being able to listen to the doctors conversations).
He had some bleeding last night when they took the tube out of his groin (one of the ways they went in to his heart) but they were able to control it.  He had some chest pain in the middle of the night...and right now I'm not sure what they did as Matt and I have had limited conversations this morning.  He insisted that the girls continue on their schedule so up today we have Ciara's 5th birthday party celebration with her little friends at Imajin That in Lawrence.  He doesn't want the kids to worry.  I hate that I'm not in there with him but I know he is in good hands (last night his nurse was awesome!) and that the kids need to keep some normalcy.
Please continue to pray and keep him in your thoughts!  We need these stents to work and the blood to flow thru continuously!!!